When I was in my 20s I thought that we (my family) would always be strong and healthy. The thought of agin never really crossed my mind. Yes, I had dealt with aging people in my day to day life but that was other people's families not my family.
Here I am 35 years later in my late 50s and have just experienced the passing of my dad. This was a first for my family. There are (were) five of us in my immediate family. For 50+ years it had always been mom, dad, brother, sister and me. I am the oldest of the three kids. In 1993 my nephew came along so he was an addition to the immediate family. Up until now we had never experienced the death of an immediate family member.
There was the usual turmoil getting the funeral together and a family member that came to the family home ravaging the house for any valuables. Dealing with this was tougher than the actual death of my dad. he had been sick for four years so we knew eventually he would pass away. Even with that knowledge his death seemed somewhat unexpected as his doctor told him he was doing well on his last visit about two months before his passing.
Now that the bulk of the duties have been completed... home title, bank accounts, social security, etc the next phase has begun. My mom! She is 80 years old and is blind from glaucoma. I have been living in the family home for four years to help out. Dad had two strokes four years ago and that's when I moved in. I work a full time job but dad was still well enough to make sure everything is safe in the house - so we did not need a caregiver for those days I would work. My brother (who works different days than I do) would come over when I was working - therefore there were only three days out of the week that they'd be alone for about six hours and dad kept an eye on things. But now dad is gone.
I had quite a few problems finding a caregiver at first. my mom decided she wanted one of her longtime friends to come by on those three days to stay with her. Her friend never showed up. This incensed me - but I remained calm and did not make any waves. There were four days that my mom stayed alone until I found someone that my mom would accept. My mom is very stubborn. I was a wreck those four days and had I not just come back to work from a 6 week leave of absence I would have called out sick to be with my mom.
Finally I have found a caregiver to stay with my sweet mom. but the sorrow and yes joy continues. It is so tough to see my mom in the condition that she's in. Back when she was in her 30s, 40s, 50s and even in her 60s she was such a beautiful vibrant woman. She was a true go-getter and had many friends in our community. I remember one of our family friends telling me that my mom was the smartest person she's ever known. The mayor of our city even tried convincing my mom to run for local office. She never did because her first priority was the family and the family business. I can tell you without my mom the family business would not have been half as successful as it was - she really knew how to network and get the ball rolling. She had (and still has) a great personality.
These days she rarely leaves the house and she cannot see and is deaf in one ear. Sometimes I think how much I will miss this cute little sweet lady. Most days I am saddened.
I ask how do I get my happiness back? I live as a caregiver to my aging mom yet still maintain a feeling of youthful abandon? How do I smile when I see her changing so much?
Everyday People Topics
Everyday topics for everyday people in everyday easy to understand words.
Thursday, March 16, 2017
Saturday, October 3, 2015
Depression
I’ve never quite fully understood depression. I can never
understand why it’s so hard to let go of depression.
I know several people that suffer from depression and my
thought so often is, “can’t you just put it out of your mind and not go back
there?” Turning off depression is easier for some than others.
I have a friend that I’ve known since 1985 her name is Susie. She was 19 when I met her and even at that young age she was filled with depression. She would cry quite a bit and she rarely smiled. I couldn’t understand this because Susie was one of the most attractive and most intelligent people you could know. As the years went on she graduated from college and landed a great job as an interior designer and started making some serious money. From there she went and married the man of her dreams and had two fantastic boys who are now both in high school and doing very well. She has the dream life… nice home… stable marriage… strong family… great job… but still to this day Susie suffers from clinical depression. She just can’t shake it. She says she gets so sad some days that she just can’t handle it. It’s like a black cloud is following her.
I have a friend that I’ve known since 1985 her name is Susie. She was 19 when I met her and even at that young age she was filled with depression. She would cry quite a bit and she rarely smiled. I couldn’t understand this because Susie was one of the most attractive and most intelligent people you could know. As the years went on she graduated from college and landed a great job as an interior designer and started making some serious money. From there she went and married the man of her dreams and had two fantastic boys who are now both in high school and doing very well. She has the dream life… nice home… stable marriage… strong family… great job… but still to this day Susie suffers from clinical depression. She just can’t shake it. She says she gets so sad some days that she just can’t handle it. It’s like a black cloud is following her.
It was just a few years ago that she mentioned the term
clinical depression to me so I decided to google it and I studied up on it. I
really wanted to know what was going on with my friend. In the short clinical
depression is described as, a constant sense of hopelessness and despair. That
is Susie.
So many times I’ve noticed Susie would go through periods
of inactivity. She’d stay home on her days off and do absolutely nothing. She’s
this brilliant designer but when she is not working it’s as if her brain
completely shuts down and she cannot think of anything. All she can do is stay
in her bed and shut herself away from the world. She said there are times when
she will stay in her room and just cry all day. I just don’t understand this as
she has such a dedicated husband. He’s stayed with her all these years, since
1994. From Susie I’ve come to realize that having a dedicated spouse or friend
does not take the depression away. So, I ask than what exactly takes it away?
Is a person supposed to live their entire life like this? Thinking about Susie
makes me feel depressed for her. She’s 49 years old and has been this way as
long as I’ve known her.
After I learned about clinical depression I finally got the nerve up to ask Susie just what it is that makes her so depressed. She didn’t have an answer. She just looked at me and said that’s the way she was born. But than she said that when she was a child her family moved quite a bit.
From the age of four through the age of fifteen they had moved more than a dozen times. Every time she made a friend they ended up moving. She grew up not really having any friends. She said that the thought of change made her very depressed. Finally when she was eighteen she split from her family and stayed
in Southern California. She thought this would help but the depression was so
ingrained into her mind that she just could not shake it. She also confessed to me that she was prone to depression as her grandmother suffered from depression and had killed herself when she was 50 years old. She couldn't take it anymore.
In 1998 Susie started seeing a therapist, as suggested by her husband. She said the therapist has helped her to understand her depression and the root of it. But she still deals with the depression. I asked her, “well isn’t there medication you can take?” She said yes, but that the medication gives her headaches and body aches and she can’t sleep at night. It takes away her depression but then during the day she can’t stay awake. So she stopped the medication.
In 1998 Susie started seeing a therapist, as suggested by her husband. She said the therapist has helped her to understand her depression and the root of it. But she still deals with the depression. I asked her, “well isn’t there medication you can take?” She said yes, but that the medication gives her headaches and body aches and she can’t sleep at night. It takes away her depression but then during the day she can’t stay awake. So she stopped the medication.
It just always has amazed me that with her depression
Susie has been able to maintain a good and healthy marriage and successfully raise
two very caring and well-focused sons. She has worked continuously for the past
20 years and is successful in all she does. I asked her, “How do you do it?”
She said she’s become very good at compartmentalizing her depression. When she’s
at work she is very capable of putting on the act. She may be hurting inside
but she’s able to put on a happy face for her clients. “Well how do you
concentrate with all the stress in your mind?” She said she juggles the stress
and confusion. She’s able to put all that anxiety into her work and really
focus. She says work is one of the few things in her life that gives her a
break from the depression. “Well how about your husband and sons?” She said that
for them she has to put on that happy face again even when it hurts. “But,” she
said, “I am honest with my family. They know I suffer with this affliction and
they are so good about it. When I get a migraine or just become moody my
youngest son helps me to relax. He cools and darkens the room and he massages
my feet. That helps but in the end I’m still depressed.”
I think the one thing that keeps Susie going is her
family. The dedication from them is unbelievable.
I’ve had many conversations with Susie about her
depression. At one point I had mentioned to her that I have this philosophy
called, “move ahead and don’t look back.” I just let go of things and not let
them bother me. “I’m like a rock,” I told her. If I do ever run into problems or
things are weighing heavy on my mind. I take all those problems and issues and
wrap them into one and put them away… I send them away in prayer or meditation.
I just clear my mind of the ordeals, the depression, and the worries and give
them away and I do not take them back. She liked this idea and she said she
would try it. A few weeks later I asked her if she had tried the “move ahead
and do not look back” method. She said that she did but it only worked for
about a week or so. I asked her why only a week. She said that it was too much
effort for her. I responded that you have to make it a daily part of your life.
Adopt it as routine. It should be natural like a reflex for you. She said she
would try and see. She never did try it again and has continued with her
depression.
After knowing Susie for three decades and having many conversations, I've finally
come to the realization that depression is Susie’s way of coping with reality.
Depression is her way of escaping depression.
Wednesday, September 30, 2015
Living with Mom and Dad
Living with Mom and Dad
I am in my mid 50’s and live with mom and dad. Now let’s
back up a bit. There’s a little more to this story than meets the eye.
Back in 1980 I moved out of the family house and did the
apartment thing with roommates and such for several years. Finally around the
age of 30 or so I landed myself into a business in which I made some good money
and was able to afford my own house and all the extras that come along with
home ownership. My life for the next 33 years moved along great. I developed
some great friends and built a nice home for myself. I never married but had a
few chances but for one reason or another marriage never panned out for me. I
was always busy with a business and with my music. I had dabbled in music for
about 15 years of my life. I was very serious with the music thing. I took
voice lessons and wrote all original songs. The last few years in the music
business were the best for me (1990-1993). I made some real headway. Airplay on
college radio stations everywhere. Even charted on College airplay charts…
reaching #1 on many local charts. Record companies were abuzz but as it all
came to a point where success as an entertainer in the spotlight in the center
of the stage was becoming a reality I lost it. My ego was exploding, my friends
started to dislike me. I was nervous all the time. I was paranoid (and I wasn’t
even taking drugs). I guess when it came right down to it I was afraid of
success… anyway that type of success. As a writer I can hide behind the pen and
write all I want. Nobody ever has to see my face.
It was in March 2013 (the Friday before Easter Sunday) my
dad had his second major stroke in that year. This one was the big one. It left
him disabled. He was in the hospital for about 5 weeks and in a nursing home
for 8 weeks and finally a boarding home for another 8 weeks. He finally made it
back home in August of 2013, but there was something different I was now living
in the family house. My dad was unable to walk without a walker and lost the
use of his left hand. He also seemed to be missing some of his mental
faculties; he was much slower in the mind and not quite as alert.
My dad wasn’t the only reason I moved back into the house. I
moved in because my mom asked me to. She said she was afraid to live alone with
dad because he wasn’t the same anymore. At that point mom was 76 and dad was
77. A few years earlier mom lost her eyesight to glaucoma and was 100% blind.
She had also lost hearing completely in her right ear and about 50% in her left
ear. Even though she didn’t say it I could tell she felt so alone and needed
someone there to keep her safe. I am my mom’s first born and when she asked me
to move back to the homestead I agreed without a second thought. This is what I
had to do. My mom is very precious to me and I wouldn’t want it any other way.
The first thing I did is clean my house up and prepared it for rental. I figured if I am not going to be in the house I might as well earn an income from the house. I ended up renting it to my young cousin and his wife and their baby. Seeing they are family I asked them to pay the mortgage each month. The agreement was that since I am not making any money from them they would take care of the normal maintenance and minor repairs that should come up.
The first thing I did is clean my house up and prepared it for rental. I figured if I am not going to be in the house I might as well earn an income from the house. I ended up renting it to my young cousin and his wife and their baby. Seeing they are family I asked them to pay the mortgage each month. The agreement was that since I am not making any money from them they would take care of the normal maintenance and minor repairs that should come up.
It was May 2013 and I was now ready to embark on my new
life. I was not especially happy about this. This was the last thing I ever
thought I’d be doing. If you were to ask me ten years ago where I figured I
would be in ten years, I would not have answered living with mom and dad.
I ended taking about 2 months away from my business in order
to deal with moving, taking care of mom, visiting dad in the hospital, dealing
with insurance companies, Medicare, Medicaid, Social Services, etc. I was so
stressed out… but I still made sure to let go of the stress so I could get a
good night’s sleep. I figured the stress will still be there in the morning so
why not just forget about when the night is here and mom is tucked in bed and
sleeping. It was my turn to spend time for myself… watch some TV, laugh a
little and just enjoy and then finally fall asleep after a long and stressful
day.
When dad came back home I took another two weeks away from
my business in order to ensure that all would be fine and to get him situated.
My brother took a week off from his job after my two weeks so there were 3
weeks total that someone was in the house with them 24/7. My brother has been a
huge help, he’s here at the house on his days off and tends to the daily
household duties and makes sure mom and dad are taken care of properly. He does
such a good job with both of them and he is especially gentle and careful with
my dear mom.
At first my dad was okay with me being in the house. We
seemed to have bonded in a way we had never bonded before… we cooked meals
together and would go out together for haircuts. I would spend a few hours each
day dedicated to speaking with my mom talking about any and every subject under
the sun. Since she cannot see and cannot hear too well she’s not able to watch
TV, read or do much of anything to stimulate her mind, so I took it upon myself
to keep her mind active by giving her several hours of very colorful
conversation. Her favorite topics are about her childhood, she really enjoys
remembering her years in school and the friends she had. She is especially
proud that she was a majorette in Junior High School. She says they won an award
the year she joined and she became the captain of the majorettes teams (or
squad).
When I first moved into the house I was surprised to find
out that my mom was completely blind, she kept this a secret from my brother,
sister and me. She claims she didn’t want to worry us. She is always
putting others before her, which is good but in the state of her health that is
not a good thing. I observed her while in the house and was completely amazed
by her and the way she got around and did things like she always had. She makes her
meals… granted they are all microwave meals such as oatmeal and waffles. She
does her own laundry and even mops the floor. If you were visiting the house
for the first time you would never realize that my mom was blind.
A few days after moving into the house I came to realize
that my mom would get confused as to when it was day or night and she would
often wake up disoriented. Most times she’d wake up still in her dreams and
would say some crazy things. One time she kept calling me by another name and
was saying something about walking to the golf course down the street. This
confused me, as I didn’t know what she was talking about. I kept asking her
what she meant. This was very strange as she was awake and sitting in her chair
saying all this. Then I came to realize that even though she looked like she
was awake she was actually still partially asleep and was still in her dream.
It took her a few minutes to wake up completely and come to reality. Once she
realized that she was sitting in her chair and talking to me she said, I
thought I was talking to so and so from the golf course. This really had me
very concerned.
Mom was also talking (more like yelling) in her sleep. Every
single night and many times in the morning I would hear her yell things out
while she was sleeping. This was so disturbing to me because I started putting
one and one together… the disorientation, the talking in her sleep and the
confusion of day and night all made me think that my mom was in the beginning
stages of dementia. I just could
not let my mom go down that road so I put an extra bit of attention to make
sure that her mind was kept busy. When I went back to work my friend Judy would
come to the house and stay with my mom and keep her company. My mom just fell
in love with Judy, they became best of friends and my mom said she really
enjoyed the “girl talk.” After about 2 months my mom was a different woman, the
sleep talking the disorientation and the confusion of day and night went away.
My mom was quite a bit more centered. This made me very happy.
After about a month of being back in the household my dad seemed to change. He was becoming angry. I think he felt I was infringing on his place as “the man of the house.” Frankly during those months he was gone I had grown accustomed to running the household duties and I think he felt threatened by that. I quickly realized that now being disabled he needed to feel that he was in control of something so I stepped back on a lot of things. This was hard for me to do because as it is he really was not capable of doing many of the things he used to do. He wasn’t able to write the checks to pay the bills (yes, mom and dad still pay bills by snail mail). Dad wasn’t able to drive anymore to do his own shopping. He wasn’t even able to help guide my mom whenever she would lose her bearing in the house (which hardly ever happened because she knows the house inside and out). My dad felt helpless. I let him take the reins of the household and things lightened up for a while. He was a bit easier to live with.
After about a month of being back in the household my dad seemed to change. He was becoming angry. I think he felt I was infringing on his place as “the man of the house.” Frankly during those months he was gone I had grown accustomed to running the household duties and I think he felt threatened by that. I quickly realized that now being disabled he needed to feel that he was in control of something so I stepped back on a lot of things. This was hard for me to do because as it is he really was not capable of doing many of the things he used to do. He wasn’t able to write the checks to pay the bills (yes, mom and dad still pay bills by snail mail). Dad wasn’t able to drive anymore to do his own shopping. He wasn’t even able to help guide my mom whenever she would lose her bearing in the house (which hardly ever happened because she knows the house inside and out). My dad felt helpless. I let him take the reins of the household and things lightened up for a while. He was a bit easier to live with.
I’ve been here for about 2 ½ years now and have become
accustomed to it. It is tough as my dad in the past 6 months has lapsed back into
this sort of angry grumpy old man mode and seems to not be able to get past. It
is very hard living with him but I am learning to just live with it and pretty
much look past his unbearable attitude. Every so often I think back on my life
pre-stroke and I do miss it. My life was so wonderful. I would come and go as I
pleased. I used to host the most fantastic dinner parties with fine food that I
would cook all myself. Now that’s all come to a stop. My social life is almost
non-existent. Probably once a month I go to lunch with a friend. All my social
life is during the day. I don’t go out in the evening anymore. I do still enjoy
shopping the big malls and shopping centers in my area. This is something I’ve
always enjoyed and am still able to do.
Yes, I miss my social life but this is a decision I’ve made.
My parents (especially my sweet mom) are my priority. My social life is
important to me but my family is more important. Yes, there are other things I
could be doing with my time, but this is where I want to be. I want my mom to
know that she is safe and will always have someone there to guide her through
the dark. I am her eyes and ears. I will not let my mom down. This is far more
rewarding than any social life can ever be.
Do I miss my social life? Yes. But do I really miss my
social life? No!
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Sunday, September 27, 2015
How Being Unplugged Can Make You Plugged In
How being Unplugged can make you Plugged In.
I wake up in the morning with my cell phone in my hand and
the dim glow of the phone screen in my eyes to greet me as I begin my day. I
get up out of bed and the first thing I do is jump from the small screen of my
phone to the much larger screen of my computer, which is kept powered 24/7. I
check in with my facebook groups and read all the posts that were posted while
I was sleeping. After that I go ahead and post new topics on all my groups (I
must have about a dozen or so). From there I go back to my cell phone while I
eat breakfast and play my wordfued and yahtzee games. I am so addicted to these
games. I play them all day long at every meal and whenever I am waiting in a
line or just have free time.
On my drive to work I keep my phone on and turn the volume
up as far as possible and listen to my Pandora radio station filled with some
great guitar driven alt-rock tunes. After work I cruise through the grocery
store with my ear buds in my ears while I talk to a multitude of friends and
family. When I’m not talking with someone I’m texting or messaging them.
Its non-stop social networking for me… facebook, twitter,
snap-chat, linkedIn, google+, tumblr, pinterest, instagram, flickr, vine,
tagged, ask.fm, skype… you name it I’m on it. I never stop. Funny thing is I
haven’t picked up the lingo… I never use IMHO, B4N, IRL or any of the lingo…
but I know what it all means. As much as I am plugged in to the internet and
social media I still prefer to at least spell my words out in full. I guess
that is my way of remaining connected to communicating on a fuller level.
I like seeing “likes” on my posts. Sometimes I count how
many likes my posts get and I even try to word my posts so that I get more
likes than the other posts. I just have to be “liked” more than anybody else
out there.
I have more than 11,000 friends on my facebook page. I
accept every single friend request I get. It makes me feel good to be so well
liked and to have all these friends online. But these friends only exist while
I am plugged into the internet. Once I turn my phone or computer off they do
not exist. Away from the internet I have maybe only a dozen friends or so and
my family… but I don’t count my family as friends and the only time I talk to
my family is when I see them on facebook or on messenger.
After thirteen years of living this way I decided to try and
experiment and just turn everything off… my computer, cell phone, tablet,
laptop… it was all turned off… powered down. All of a sudden I felt this
quietness fall upon me. I felt so alone and I actually grew bored. Me bored? I
hadn’t been bored once in the past thirteen years. The internet had kept me
entertained from sun up to sun down everyday. After about two hours I took hold
of my cell phone but didn’t turn it on. I just held it in my hand and it felt
so comfortable. I was so tempted to turn it on but I didn’t. Next, I sat at my
desk and stared at the blank screen of my computer. I sat there for 15 minutes
just staring at the nothingness. I became so aware of the “nothingness” in my
life at this point. Without my internet I simply had nothing. I managed to make it through the day
without the internet. However I didn’t talk to one person throughout the day, as
I’m not used to actually talking with people. I’m much better texting or
messaging. But face to face, I just don’t do that.
I went to bed with phone, computer and everything still
turned off with the intention of reconnecting in the morning. I arose at 7:00
am as usual and I couldn’t find my phone. This was the first time in years
that my phone was misplaced. I almost went into a panic. “What will I do
without my phone?” I looked under my bed, my backpack, my pants pockets, and my
briefcases. It was absolutely nowhere to be found. I almost wanted to cry. My
phone is my lifeline. Okay, I accepted the fact that my phone was gone so I sat
at my desk and felt the comfort of my computer. In front of my computer I can
reconnect with my world, send a message to my sister and visit with my
thousands of friends. But I just sat there in front of my darkened computer. I
wanted to turn it on but something was preventing me. I just thought to myself
these thousands of friends online aren’t really real friends of mine. Yeh maybe
a handful of them are friends but the other 10,995 aren’t friends at all,
they’re just part of my self-imposed popularity contest.
I sat there thinking about my real friends… the ones I was
friends with before there ever was an internet. The ones that I got in trouble
with, the ones I laughed and cried with. Those friends. It had been several
months since I last actually saw my friend Lisa or Robert in person. Oh yes,
I’ve kept in touch with them. Last year when Lisa was in the hospital with an
infection, I left her a message on her facebook page to express how sorry I was
that she was sick and that my thoughts and prayers are with her. I didn’t even
visit with her while she was sick. When Robert got his promotion on his job I
sent him an email to congratulate him and wish him the best. I even sent this
clever little image with balloons and smiling faces.
I realized that in the last thirteen years I’ve let my life slip
away from me, and for what, 11,000 people that I don’t even know! I ended up
spending the next six days away from the internet or any social media and
reconnected with my friends and my family and actually spoke with each of them
face to face… even hugs were exchanged. I almost forgot what a hug felt like.
When I finally got back online I decided I was going to cut
my online time in half. Afterall before the internet ever happened I would
spend time with my friends, we’d go out and enjoy a cup of tea. If I was
expecting an important phone call, I waited at home for the call. Back in the
70’s and 80’s we did not have the world attached to us in the form of a cell
phone everywhere we went and we did just fine. We survived without social media
following us everywhere we went.
Nowadays my phone is turned off more than it’s on. I only
turn it on when I want to make a phone call or if I have an important call
coming in. But once I receive the call the phone is turned off. I spend maybe
two hours a day on the phone playing my yahtzee and wordfued. As for other
social media maybe an hour day and that’s it. No more 24/7 and by the way, now I
have something like 350 friends on facebook. I only accept friend requests from
people I actually know.
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